Die 18. Jahrestagung der Internationalen Gesellschaft für Bipolare Störungen ISBD, welche gemeinsam mit der 8. Biennale Konferenz der Internationalen Gesellschaft für affektive Störungen ISAD in Amsterdam stattgefunden hat war ein großer Erfolg. Über 1000 Teilnehmerinnen und Teilnehmer aus der ganzen Welt fanden sich ein um aktuelle Probleme und neue Erkenntnisse im Bereich der Forschung rund um Bipolare Störungen und depressive Störungen zu referieren und zu diskutieren. Die Konferenz Kurse waren sehr schnell ausgebucht und erfreuten sich großer Belibtheit bei Ärztinnen und Ärzten, die sich nicht auf Bipolare Störungen spezialisiert haben.
Erstmals war es gelungen, daß Betroffene und Angehörige im Hauptprogramm eines Interanationalen Kongresses dieser Größe aufgetreten sind.
Prof Dr. Christian Simhandl hat Frau Marylou Selo, Herrn Martin Kolbe und Frau Mag. Joy Ladurner zu diesem Zwecke eingeladen über die Bipolare Störung aus ihrer Sicht und ihren Erfahrungen zu berichten.
Zur allgemeinen Information werden hier die Abstracts der Betroffenen wiedergegeben.
Experts Experience - A Long Way To Go.
Symposium on Thursday July 14th 2016 at 9:00
at the 18th Annual Conference of the
International Society for Bipolar Disorders (ISBD)
& 8th Biennial Conference of the
International Society for Affective Disorders (ISAD)
Chair: Christian Simhandl (Austria)
Bipolar Disorder is a long lasting and life threatening disorder. Even in this day and age many patients with bipolar disorder initially receive the wrong diagnosis of unipolar depression. This is confusing to both patients and future doctors. Medication and good advice are usually not helpful in understanding this complex disorder. Frequently patients have a long, exhausting road ahead of them suffering from repeated episodes, seeking various doctors consultations and trying a large variety of medications.
No wonder patients get annoyed with the medical system and all who stand for it. Doctors often believe that a single conversation can explain the whole disorder. In acute situations usually the people who bring the patients to the consult or accompany them are forgotten. Relatives and friends in their different roles ( parents, children, siblings, partners) expect information, support and sometimes need psychological help for themselfves but the system doesn’t allow for the time nor for the dedication.
In this session we will approach this issue from various sides, We will attempt to show the critical part of developing acceptance, facilitating coping and handling mechanisms for bipolar disorder in all the many forms in which it appears. We will show you experiences made over decades. We shall explore the role of self help groups for patients, family and friends as well as the effect of anti stigma campaigns.
Christian Simhandl, Psychiater & Psychotherapeut,
Vorsitzender der ÖGBE, www.oegbe.at
Starting a Self Help Group and Keeping it Alive and how a Brainbus helped reduce stigma in the German-speaking part of Switzerland.
Marylou Selo, Patient Advocate
Describes the process of founding a self help group and how to keep it going in a world that is increasingly focused on web-support. Deals with problems such as how to answer difficult questions (a.o. medication), how to promote compliance, encourage people to get their “life” back (i.e. work, relationships), deal with insurance questions, etc.
The New York Mood Disorder Support Group has undergone many changes since is founding in 1980 and is still going strong thanks to a strong board and devoted volunteers.
The Brain Bus in German-speaking Switzerland is an experiment to educate the general population on illnesses of the brain, including mental health issues.
By having the bus parked at regular Saturday markets, people are encouraged to step in, learn and leave with acquired knowledge and reduced stigma.
Gewinnerin des 1. Aretaeus Preises der DGBS 2014 und Gewinnerin des Mogens Schou Price 2016 for Public Service and Advocacy verliehen von der ISBD.
Martin Kolbe: Becoming An Expert By Experience – A Long Hard Road
Description of a learning process that took almost 30 years – from first symptoms, wrong diagnosis to further episodes, partly with and partly without hospitalization. Long time neglecting the diagnosis bipolar until a heavy and devastating manic episode in 2003 made clear that the diagnosis was correct. This led to the decision to finally take measures to prevent further episodes. Learned a lot by first participating in and later managing an internet forum dedicated to bipolar disorders. Increased involvement in the German Society for Bipolar Disorders (DGBS) proved helpful; since 2011 on the Board as patients' speaker, focusing on public relations and anti-stigma projects such as the Bipolar Roadshow. Stable since 2003 with very little medication. Enjoying life and return to creativity.
Keywords: Expert by experience, neglect, wrong diagnosis, decission, involvement
Member oft he board oft he German Society for Bipolar Disorders (DGBS), E-Mail: firstname.lastname@example.org
Joy Ladurner: Expert By Experience – A Carer’s (Daughter’s) Story
Being a child of a person with a bipolar disorder makes me, involuntarily, an expert by experience. My mother’s illness influenced my life in many ways, formed part of my reality and also defined who I am today. As a child I acquired various strategies, unconsciously, to cope, to “survive”. As an adult I started questioning and gradually changing these. I had become an expert in focussing not on my needs, but on those of others. It was especially challenging for me to acknowledge and voice what it was I wanted and needed instead of constantly being alert and feeling responsible for solving all sorts of problems, with or without mandate. Being overburdened, scared, sad, searching for answers to the questions “why our family, why my mother, why me?”, feeling isolated, lonely and misunderstood. In 2004 I entered a peer-group at HPE, an inspiring experience, which also helped me to see the bigger picture, listening to and learning from other people’s stories. Gradually I am more and more understanding who I am and why I am as I am as well as becoming conscious of what I can actively do and where MY scope of action lies. I have been actively involved for HPE since 2005, my main interests being: different roles of carers especially children, poverty and equity and creating more awareness for mental health.
Keywords: Carer, experience, child, daughter, bipolar
Hilfe für Angehörige Psychisch Erkrankter (HPE)